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Fighting Back

Fighting Back

Fighting back Jon is fighting back hard with the help of our very dedicated and skilled team of Doctors combined with the advances in… Posted by Facing Up 2 Kidney Cancer on F

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Schrödinger’s Cat

My life on immunotherapy  After 9 months on Nivolumab it’s difficult to imagine a time before our fortnightly trips to London from Hereford, or even a time in the future without them.   In 2013 I had a course of High-dose Interleukin 2 (IL2) at The Christie in Manchester, which didn’t appear to be effective. It was a […]

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The Lily Pad Walk

The Lily Pad Walk

A cancer diagnosis changes everything, a stage four terminal diagnosis changes everything again. There is no control available, and there are no cures, only vague chances to extend life. For us, just now, it is just a matter of getting through each fortnight of the current immunotherapy treatment regime in the best way we can. […]

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FU2KC

NICE deadline re: new immunotherapy drug

Please read and help share this blog post: The deadline is Tuesday 26th July for further submissions to NICE regarding the licensing and funding of Nivolumab. This new immunotherapy PD-1 type drug is so important to all kidney cancer patients everywhere. We are still hoping for some positive scan results for Jon in time to […]

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Living in the shadow...

Living in the shadow…

Life is a little better. Jon remains in the constant shadow of the grim reaper and yet we find we’ve adjusted more to living in the moment and are both doing ok. The intense shock, and the dreadful grief, which followed the terminal diagnosis and worsening scans in 2014 and early 2015 has eased. Riding […]

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Immunotherapy in action

Immunotherapy in action

This video explains brilliantly just how the newest immunotherapy drugs work. Jon is currently on one of these drugs called Nivolumab for his relapsed metastatic disease.   

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Message from Jon

Message from Jon

My next treatment starts tomorrow, Monday. Back to the Royal Free in London for round 3 of my battle with kidney cancer. Round 1 was the radical nephrectomy in 2013 in Oxford, and Round 2 was the high dose Interleukin in 2014 in Manchester. It’s a battle with only one winner, but in my mind […]

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Immunotherapy hopes

Immunotherapy hopes

We like a good news story, especially where incurable cancer is concerned. You can read this Daily Mail article here . It reports on great results with two new immunotherapy drugs used together in the USA Jon starts on just one of these drugs – Nivolumab – next week. ‪#‎cancer‬ ‪#‎facingup2kc‬ ‪#‎hope‬ ‪#‎fingerscrossed‬ Past research has found that there are certain similarities between […]

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FU2KC

A message from Sarah

My name is Sarah. My husband Jon has metastasised kidney cancer (in his lungs) and he is about to start a new immunotherapy treatment, called Nivolumab, as he continues to face up to kidney cancer. I have spent the last 12 months successfully organising and running Jon’s Facing Up 2 Kidney Cancer charity event, which […]

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Who Dares Wins

Who Dares Wins

 Jon’s courage and determination in the facing of continued cancer growth is awesome. If you’d like to support him please text JBKC10 £3, £5 or £10 to 70070. Every penny goes to the research project and normal text charges apply. Thank you  Jon’s ‘motto of the moment’ is very well known and is borrowed from […]

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